WELCOME to beat the Beast
My name is Chris and in April 2021 I was diagnosed with MND. I was 31 years old at the time and given 27 months to live. I can’t quite explain what it felt like when I heard those words “you have MND” but I do remember everything just stops and literally your entire world just crashes. Everything I have ever done, seen, worked for, planned for, experienced in life, just flashed before my eyes and continues to do so to this day.
After the better part of a year searching for answers and being in and out of hospitals I had found my truth. It wasn’t the truth that I had planned for, lived for, or wanted, and it’s one I’ll never fully understand. Since I’ve been diagnosed I’ve spent the last 5 months in a very dark place, totally surrounded by love and support and people just waiting for me to come back out into the world.
I’m not sure I’ll ever be comfortable talking about what’s happening to me, but there comes a time when you just have to let people love you and for me that time is now. The amount of love and support I have felt from all over the world has just been heartbreaking to me but it’s giving me a reason to get up each day. It has brought back so many great memories I have been lucky enough to experience in my life. I’ll never be able to repay each and every one of you but I hope this platform is the beginning of a new chapter in my story, one that can help people more than I could’ve ever imagined.
Words will never truly be able to describe what I’m going through or do it justice, but if my experience can somehow help just one person become more aware, help someone who might have MND live an extra day, or educate someone about this terrible disease, then hopefully I will leave this place a little better than when I found it.
